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Dear Sherod

Posted on January 18, 2017 at 12:55 PM Comments comments (227)
Dear Sherod,
   Well this last Dec. marked 7 years since your passing and it hasn't been easy without you here. So much has changed since you've been gone. Your going to be an Uncle for the 2nd time and your niece Sofia shares your middle name in your honor. 
   The Foundation is continuing to go and we are meeting more and more families with NF and helping out more and more families in our very own community. 
  I won't lie it has been very hard holding down a full time 5o to 60 hour a week job, be a wife, a mother and a grandmother and keep the foundation going. It has been challenging to say the least. But we have a great group of friends and family who have stuck by us no matter what. 
   They believe in your dream of helping children who are fighting NF and or Childhood Cancer. This year we will celebrate the 7th Annual Masquerade Ball. It's very exciting and scary at the same time. 
   I love you son and I miss you like crazy every day. I know we will meet again someday and until we do please continue to watch over us and guide us in the direction we need to be. 

   Love you always and forever 
       your mom

It's been a long road

Posted on March 22, 2016 at 4:44 PM Comments comments (165)
Well son .... we did it!!!! This years Masquerade Ball was a huge success. I feel we are reaching more and more people each year and in turn we are able to help out more in our communitie. This year we were SOLD OUT!!!! I can't tell you how good that feels to say that.
   A wonderful man by the name of Scott Mathews made this amazing metal sculpture of Dino Doozer to hang locks on. I wish you could have seen it..... you would love it. Right now we are selling locks with little metal hearts to hang on it in memory of loved ones lost. We will be splitting the proceeds with Doernbechers Children's Hospital so they can continue to help kids as well.
   Your brother Andrew and little sister Lizzy were at the Ball this year helping out as well and I have to say it was really nice having all of us together helping spread the word about NF, Childhood Cancer and what and who the Dino Doozer Foundation represents. We've come a long way son and we couldn't' t have done this without you.
  I love you and miss you everyday son.

   Love always and forever ,
             your mom

THE HOW AND THE WHY?!

Posted on January 22, 2015 at 6:52 PM Comments comments (329)
Well it's that time of year again where I go out and get things ready for the Annual Dino Doozer Masquerade Ball. A lot of people ask me how and why I started this foundation. Well this is the how and the why:
    Sherod (my son is reason why) I started this foundation. It all started with a diagnosis of Neurofibromatosis when he was 3 months old and then his diagnosis  of cancer back on Aug. 4, 2008. I was told my son had cancer. Then as the weeks went by the cancer turned out to be more than what the Dr.'s expected.....and us for that matter. How we went from your son has Cancer to I'm sorry but your sons Cancer is very rare and we do not have a cure, but we will still try to do what we can, is very hard for any parent to swallow.
    So because of his medical expenses we started raising money to help us get through those tough times. Then in Dec. of 2009 a few weeks before he passed away, he asked me to continue helping families and kids affected by this monster known best as cancer and  NF. We had several conversations over the next few weeks on how we can raise money. He knew he had a few small life insurance policy's and asked that I donate that to the Foundation until we can start raising money on our own to help those families in need. I also had to promise that I would send as many kids with NF to Camp NewFriends in Virginia. That was the same camp that he went to and thought all kids with NF should go to that camp.  
  So with his kind heart and his last words and as a mother keeping her promise that is exactly what I did. I put every last dime into the foundation just like he asked.
 My family was very supportive of this and to this day I will continue to honor his wish to help those kids and families in need with the help, love and support of my family and dear friends.  
  I think if Sherod could talk to me right now he would be so proud of where we are today with the Foundation and how far we have come. It's not easy asking others to help keep your son's memory and dreams alive.  But every day I get up and breath in and out and think today is new day and I'm going to tell someone about the Dino Doozer Foundation and what we stand for and who we stand next to and fight.
  So know that you know the how and the why.....why don't you tell someone about Dino Doozer.

  

5 YEARS AGO

Posted on January 22, 2015 at 6:14 PM Comments comments (241)
It happened on a cold snowy night 5 years ago today. I held your hand one last time,I kissed your cheek and I brushed your hair back as you told me it was almost time for you to go.
I was so scared and hurt and felt all alone. I knew I had to let you go and I knew then just as I know now that, that was the most hardest thing for me to do was tell you goodbye. You were only 16.... You experienced more pain and suffering than any child your age should.
you did put up o...ne hell of a fight son. You were so brave... Even at the end. You made me promise you that we would continue to help kids and families who are going through the same thing we went through. You made me promise that we would send kids with NF to the very camp you looked forward to each year.
well son it's been a long tough 5 years but we are still helping kids and there families and we are still sending kids to camp NewFriends every summer just like I promised.
The Foundation had come along way in the last 5 years. We are continuing to grow and maybe one day we will be able to reach out to more and more families and one day everyone will know what NF stands for and they will know what Dino Doozer stands for and who he stands behind.
5 years ago today your body was taken away from me but you will always be in my heart . And because of you and your hopes and dreams of helping others you have given me a reason to get up everyday and keep my promise.
I love you and miss you everyday son.
Love always and forever
your mom

Remembering you at Christmas

Posted on December 1, 2014 at 3:20 PM Comments comments (159)
     As the Christmas Season draws near my heart begins to hurt just a little more with each passing day. This year will mark Sherod's 5th year in Heaven. You know that old saying that "time heals all wounds"... well I can tell you that this wound will never be healed, but I have been learning to deal with the loss one day at a time.

   I know there is a lot of other parents who will have a hard time this Christmas Season as they are missing there loved one(s) as well. So please take a minute and give then a HUG for Christmas and let them know that you are thinking of them and there loved one that is no longer with them. A hug is one of the best gifts you can give a grieving parent.

   Sherod I miss you every day son. I know you are watching over all of us and every time it  starts to snow I know it's you sending me kisses from Heaven.


 

Missing you Sherod

Posted on March 19, 2014 at 9:22 AM Comments comments (140)
Today is a much needed emotional day. I miss you son and I hold my feelings in for so long that it seems my sides will split with sorrow. I know I shouldn't hold it in, but I just don't like to share my feelings with everyone and I never really seam to have that alone time needed. You've been gone for over 4 years and I still haven't watch a single memory movie we started making during your first round of chemo. I'm afraid of the pain and hurt I will feel seeing you and hearing your voice only on the tv but not in real life. Silly I know but a big part of me is not ready to admit you are never coming back  home.
 I look for clues and signs that you have been around... it's the only thing that really gets me through the day along with my faith in God. Do you know I still have that storage unit. I pay 80$ a month because I'm not ready to deal with your loss. I've been paying on that for almost 5 years now. I know to some it may not make sence, but to those who walk this same road I know will understand all to well.  The thought of cleaning out your stuff cuts me deap and in the heart. What am I suppose to do with your stuff? I just don't think I can bring myself to throw your stuff away or give it away. I really just don't know what to do.
  I think about you every day son and I can't wait to go to sleep at times in hopes I will see you in my dreams. I miss everything about you. Your smell, your smile, your voice and I miss you calling my name.
  Loosing you was not only life changing but forever changing.

Facts on NF

Posted on January 22, 2014 at 9:01 AM Comments comments (203)
 Neurofibromatoses affects more than 100,000 Americans; this makes NF more prevalent than Cystic Fibrosis, hereditary Muscular Dystrophy, Huntington’s Disease and Tay Sachs combined.
 
             With that being said...what do you think of NF now?
 
 
  Please make yourself aware of NF and the different types of NF out there. Children are being teased daily because of the way NF is deforming there bodies. Surgery after surgeries are being performed daily to lighten the load of heavy tumors found on there bodies. Some tumors weighing more than 10 lbs.  
    Please ..... Helsp support Dino Doozer send kids with NF to Camp NewFriends so they can learn how to deal with every day life and living with NF. Give them a chance to see others with NF and let them know they are not alone.

A letter to Heaven

Posted on March 1, 2013 at 6:25 AM Comments comments (264)
  Dear Sherod,
      As you know we are working around the clock amping things up for this years Annual Dino Doozer   "An Evening with the Stars" Event.  We have been on a Cupcake Campaign and it seems to be paying off. Yesterday we received a very generous donation and it just felt like such a ground breaking moment. I can't really even put into words how amazing it felt. Tears of joy came over me and I just knew at that minute that all our hard work is paying off.
 
    We are helping more families now than ever and although rewarding I wish Cancer and NF did not exist.  But until we find a cure for both we will always be there to help those families in need and help them assist in there fight.
     I can't Thank you or God enough for giving me the strength to carry on your Dreams of helping those in need and of course I can't do it alone so I have to Thank all of our Board members and those who support us.
       Well son as I'm sure you know I miss you like crazy and my days will never be the same without you, but I do feel you near me every day. I am so proud of you son and all that you have thought me. Because of you I have grown to be the person I am today and I can't tell you how rewarding it is to be your mother.
 
   I love you Sherod always and forever
              love mom

Saying Goodbye

Posted on December 29, 2012 at 11:48 AM Comments comments (362)
3 Years ago today I watched my son take his last breath. Since then my life has never been the same. This day will always remind me of that day for as long as I live. Telling my son I love him and saying good bye was not what a mother is suppose to do, but that is what happened on this Dec. 29, 2009.
The last 3 years have been very hard for me, my kids and our family. I have been running from my sons death all this time. Hoping I will wake up and it will all be a bad dream, but every day I wake and he is still not here. I've kept myself busy....so busy at times I forget what I'm suppose to do next.
I've recently stopped running and have asked God to please help me get through this as I need his strength every day to help me keep going.
I know I'm not the only mother in the world who has lost a child but it does feel like i'm the the only one at times. Holidays are rough for me as I'm sure it is rough for the rest of the families I dea
l with on a day to day basis. My son has asked me to continue to help families just like us. I have to admit it is very hard at times because you know what they are about to go through and you wish you could take that pain away. I find myself at a loss for words at times when a mother calls me to tell me her child has passed. I to don't really know what to say except....I'm sorry.
I know it has been 3 years, but it seams just like yesterday that I was holding my sons hand telling him we will be OK. I remember him telling me it was time for him to go and he didn't want me to be sad. How in the hell do you tell your own child it's ok for him to go.....how to do get up each day after that? I really don't know how I do it. I just do it. It's hard....so hard it hurts. But each day I put a smile on my face and most of you wouldn't even know I woke up this morning crying my eyes out...missing my son. Most of you wouldn't know that I only sleep a few hours a day because I'm afraid of that reoccurring dream of my sons last day.
They say times heals all....Im here to tell you time is just time and it doesn't heal. Time is just a clock on the wall that tells you what everyone else is doing. Time tells you when to get up, go to bed and when to eat. Time is never ending for a mother missing her son.
I miss you each and every day Sherod. I love you
Love always and forever your mom

A Mothers Cry

Posted on December 27, 2012 at 8:55 AM Comments comments (1365)
  
 
    Dec. 29, 2009 is a day I will never forget. As that day approaches my heart begins to ache harder with each passing minute. To relive that last day with you is not something I can easily share with anyone. It's hard to believe you will be gone for 3 years.....the pain I feel is still so new and heart breaking.  I often wonder if the pain will ever go away and if it does what is going to happen to me then?
    I miss you Sherod and everything about you. Please for the love of God send me a sign from Heaven above that you can hear me cry out your name. I can't feel you you, hold you or hear your voice....please just let me know you are here with me. I know I tell myself you are here with me but I long to hold you son. I want to hold you and tell you that I'm sorry it was you that had to get sick. I want God to give me a chance to make things better for you then maybe he wouldn't take you from me. I want to come home from work and find you waiting for me....I need something ....I need to feel the comforts of my son.
    
     Dear Heavenly Father....
                 I do not fully understand the reasoning for you taking my son. I know good has come out of his passing because I chose not  to just let my son be another victim of Cancer. In his dieing days he talked of an Angel.... A red headed Angel and he said you sent for him and he could see her and he could talk to her. If you can send an Angel to talk to my son and put comfort in his heart and mind can you please let me see my Angel. For it has been 3 years since you have taken him. It has been a long hard 3 years and I fight each day to get up knowing I will not see him nor will I hold him or hear his voice. I can only see him in pictures.
         Please God Please hear the cries of a mother and give me this one wish....Please send my Angel home his mommy misses him.
   

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