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It's been a long road

Posted on March 22, 2016 at 4:44 PM Comments comments (163)
Well son .... we did it!!!! This years Masquerade Ball was a huge success. I feel we are reaching more and more people each year and in turn we are able to help out more in our communitie. This year we were SOLD OUT!!!! I can't tell you how good that feels to say that.
   A wonderful man by the name of Scott Mathews made this amazing metal sculpture of Dino Doozer to hang locks on. I wish you could have seen it..... you would love it. Right now we are selling locks with little metal hearts to hang on it in memory of loved ones lost. We will be splitting the proceeds with Doernbechers Children's Hospital so they can continue to help kids as well.
   Your brother Andrew and little sister Lizzy were at the Ball this year helping out as well and I have to say it was really nice having all of us together helping spread the word about NF, Childhood Cancer and what and who the Dino Doozer Foundation represents. We've come a long way son and we couldn't' t have done this without you.
  I love you and miss you everyday son.

   Love always and forever ,
             your mom

THE HOW AND THE WHY?!

Posted on January 22, 2015 at 6:52 PM Comments comments (323)
Well it's that time of year again where I go out and get things ready for the Annual Dino Doozer Masquerade Ball. A lot of people ask me how and why I started this foundation. Well this is the how and the why:
    Sherod (my son is reason why) I started this foundation. It all started with a diagnosis of Neurofibromatosis when he was 3 months old and then his diagnosis  of cancer back on Aug. 4, 2008. I was told my son had cancer. Then as the weeks went by the cancer turned out to be more than what the Dr.'s expected.....and us for that matter. How we went from your son has Cancer to I'm sorry but your sons Cancer is very rare and we do not have a cure, but we will still try to do what we can, is very hard for any parent to swallow.
    So because of his medical expenses we started raising money to help us get through those tough times. Then in Dec. of 2009 a few weeks before he passed away, he asked me to continue helping families and kids affected by this monster known best as cancer and  NF. We had several conversations over the next few weeks on how we can raise money. He knew he had a few small life insurance policy's and asked that I donate that to the Foundation until we can start raising money on our own to help those families in need. I also had to promise that I would send as many kids with NF to Camp NewFriends in Virginia. That was the same camp that he went to and thought all kids with NF should go to that camp.  
  So with his kind heart and his last words and as a mother keeping her promise that is exactly what I did. I put every last dime into the foundation just like he asked.
 My family was very supportive of this and to this day I will continue to honor his wish to help those kids and families in need with the help, love and support of my family and dear friends.  
  I think if Sherod could talk to me right now he would be so proud of where we are today with the Foundation and how far we have come. It's not easy asking others to help keep your son's memory and dreams alive.  But every day I get up and breath in and out and think today is new day and I'm going to tell someone about the Dino Doozer Foundation and what we stand for and who we stand next to and fight.
  So know that you know the how and the why.....why don't you tell someone about Dino Doozer.

  

A message from the Dino Doozer Foundation

Posted on September 26, 2012 at 9:51 PM Comments comments (47)
As I read the words from another Mother who is loosing her son to NF and Childhood Cancer I am reminded once again the pain that a parent goes through. My heart just breaks every time I hear about another child lost to Cancer. I have vowed along with the rest of the Board Members of the Dino Doozer Foundation that for every child who comes through this Foundation and earns there Angel wings we will purchase a Star in there Honor for there parents.
     A lot of people recognize Childhood Cancer Awareness during the month of Sept. But Childhood Cancer needs to recognized every day. As with every passing day children are dieing because we do not have a cure yet. And until a Cure is found we need to help make this place on earth as memorable for those Children and there families.
  The Dino Doozer Foundation recognizes this and  is here to support those who need help. Please if you know of a family in need....PLEASE CONTACT US BY PHONE ANY TIME DAY OR NIGHT.

    Childhood Cancer....no family should have to go through this on there own.

Childhood Cancer is NOT RARE BUT THE CURE IS SO LETS FIND IT!!!

Posted on January 20, 2012 at 10:09 AM Comments comments (348)
Below I have copied the letter I sent to Andrew Becker. He is the Media Relation for the American Cancer Society.
 
 
       Childhood Cancer is NOT RARE...THE CURE IS 
    
Dear Mr. Andrew Becker,
   
                I am writing to you to let you know that I am or was a mother of 3 beautiful children at one time. I lost my son to Childhood Cancer
Dec. 29, 2009. Sherod fought his whole life with NF-1 and underwent multiple surgeries in his 16 years of life. On Aug. 4,2008 I received a phone call that changed our life forever. The Dr. told me that my son had Cancer.
  Childhood Cancer may seem “RARE” until you walk into a Children’s Hospital and have to stay with your child for weeks at a time on the Pediatric Oncology floor. At that time you replace the word “RARE” with “NORMAL”, because you have just began a new “NORMAL from here on out whatever the outcome may be.
  I know you have received a lot of hate mail….because of your comments. I don’t hate you, I just  know you don’t understand what it’s like to be in my shoes and I hope you never do.
  You are a Corporate Man and yes you have a heart. You have a wife a family and you go on vacations and you do family stuff and I’m sure you have lost something or someone at one time and know what that feels like. When it is your own Child it is so much different. Your world is turned upside down. At times you don’t even know if your coming or going or where you have been. Shoot I have to remind myself to get up every day and breath in and out still and get ready for work. I still run from the fact that my son has been gone for 2 years. I keep so busy sometimes I lose track of the days.
  You know when my son passed away I had several life insurance policies and I put it all into the Dino Doozer Foundation that he and I started together to help kids just like him. I didn’t go to Hawaii like I’ve always wanted. I didn’t buy anything for myself. I put it all into the Foundation to help kids I didn’t even know.
 Mr. Becker I have been through hell and back working sometimes up to 3 jobs while my kids were growing up and I missed a lot. When Sherod got sick I still had to work 40+ hrs a week and had small jobs on the side just to make ends meet because of the medical bills. In the last 4 years I on average sleep maybe 5 hrs a night on a good night because that’s what I’m use to. As a parent who has lost a child take it from me. A bald Barbie…Mattel can earn so much from this and those dolls would be flying off the shelves. The parents would be teaching them and talking to them about the meaning of this “Bald Barbie”. As far as money….hello Mattel could donate the money to different organizations just from the sales of those Barbie’s.  I hope you understand that a lot of people are talking about not raising money for the Relay for Life because of what you have said….My son enjoyed his one and only time going to the Relay for Life. I remember the day we walked the track together. I get luminaries every year just for him.
  Everyone makes mistakes Mr. Becker just make your mistakes right and let’s move on. Remember your not a bad man your just a man who made a mistake….everyone makes mistakes. Your only looked down upon if you refuse to fix what you did or said wrong.
 
 
   I run a very very small local Foundation in Longview Washington and I still work 2 jobs, and run the Dino Doozer Foundation. I make less than 35K a year. I now have 2 children and still raise awareness for NF and Childhood Cancer. I may not have the money you do Mr. Becker but I have a lot of HEART and that is what keeps me going. If you want a better understanding of what really goes on in my world please feel free to contact me at any time day or night.
  I have attached a picture of my youngest her name is Elizabeth. This is a picture of her next to her brothers grave. It snowed today for the first time in year and he isn’t here to go out and play in the snow with her because he was taken away by cancer…..it’s not as “rare” as you think.
 
 
   Thank you for taking your time to read my message to you. I hope you enjoy your day and please remember I don’t hate you and I don’t think you’re a bad person. I just think you need a chance to see things from a different point of view. You may want to speak with your wife and get her point of view on things and how she feels if she was in say my shoes. Let her read my blog on dinodoozerfoundation.org then ask her how she feels…her real feelings.  
 

Camp NewFriends

Posted on January 17, 2012 at 11:10 AM Comments comments (2348)
Well Son I think you would be very proud of what the Foundation has been doing. We have been growing...slowly but we have been growing just like you wished.
  I was out to lunch with some of the girls from the office a few weeks ago. We walked in to take our seat and noticed a  was a group of Ladies from the Red Hat Society sitting behind us. I turned to check out some of the hats and noticed a woman who seemed to have plexiform neurofibromas on the outside of her skin. I thought to myself....she has NF and I am not leaving until I find out for sure and let her know that she is not alone.
   At the end of our meal as we were heading out I had a chance to speak with the most kindest woman and yes she did have NF. We introduced ourselves and talked for a good 15 min. I wish I could of sat down and talked to her then but I had to return to work. I gave her my card and told her what I could about our Foundation in hopes that she would contact us.
   I am pleased to say she did. A few days later I was checking me e-mails and I received one from her and we will be meeting up soon to visit. I can't wait to hear her story and how she has lived with NF.
  It's because of you son I have been able to find the courage to push on. I miss you and love you very much.