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|Posted on March 22, 2016 at 4:44 PM||comments (163)|
Well son .... we did it!!!! This years Masquerade Ball was a huge success. I feel we are reaching more and more people each year and in turn we are able to help out more in our communitie. This year we were SOLD OUT!!!! I can't tell you how good that feels to say that.
A wonderful man by the name of Scott Mathews made this amazing metal sculpture of Dino Doozer to hang locks on. I wish you could have seen it..... you would love it. Right now we are selling locks with little metal hearts to hang on it in memory of loved ones lost. We will be splitting the proceeds with Doernbechers Children's Hospital so they can continue to help kids as well.
Your brother Andrew and little sister Lizzy were at the Ball this year helping out as well and I have to say it was really nice having all of us together helping spread the word about NF, Childhood Cancer and what and who the Dino Doozer Foundation represents. We've come a long way son and we couldn't' t have done this without you.
I love you and miss you everyday son.
Love always and forever ,
|Posted on January 22, 2015 at 6:52 PM||comments (323)|
Well it's that time of year again where I go out and get things ready for the Annual Dino Doozer Masquerade Ball. A lot of people ask me how and why I started this foundation. Well this is the how and the why:
Sherod (my son is reason why) I started this foundation. It all started with a diagnosis of Neurofibromatosis when he was 3 months old and then his diagnosis of cancer back on Aug. 4, 2008. I was told my son had cancer. Then as the weeks went by the cancer turned out to be more than what the Dr.'s expected.....and us for that matter. How we went from your son has Cancer to I'm sorry but your sons Cancer is very rare and we do not have a cure, but we will still try to do what we can, is very hard for any parent to swallow.
So because of his medical expenses we started raising money to help us get through those tough times. Then in Dec. of 2009 a few weeks before he passed away, he asked me to continue helping families and kids affected by this monster known best as cancer and NF. We had several conversations over the next few weeks on how we can raise money. He knew he had a few small life insurance policy's and asked that I donate that to the Foundation until we can start raising money on our own to help those families in need. I also had to promise that I would send as many kids with NF to Camp NewFriends in Virginia. That was the same camp that he went to and thought all kids with NF should go to that camp.
So with his kind heart and his last words and as a mother keeping her promise that is exactly what I did. I put every last dime into the foundation just like he asked.
My family was very supportive of this and to this day I will continue to honor his wish to help those kids and families in need with the help, love and support of my family and dear friends.
I think if Sherod could talk to me right now he would be so proud of where we are today with the Foundation and how far we have come. It's not easy asking others to help keep your son's memory and dreams alive. But every day I get up and breath in and out and think today is new day and I'm going to tell someone about the Dino Doozer Foundation and what we stand for and who we stand next to and fight.
So know that you know the how and the why.....why don't you tell someone about Dino Doozer.
|Posted on September 26, 2012 at 9:51 PM||comments (47)|
As I read the words from another Mother who is loosing her son to NF and Childhood Cancer I am reminded once again the pain that a parent goes through. My heart just breaks every time I hear about another child lost to Cancer. I have vowed along with the rest of the Board Members of the Dino Doozer Foundation that for every child who comes through this Foundation and earns there Angel wings we will purchase a Star in there Honor for there parents.
A lot of people recognize Childhood Cancer Awareness during the month of Sept. But Childhood Cancer needs to recognized every day. As with every passing day children are dieing because we do not have a cure yet. And until a Cure is found we need to help make this place on earth as memorable for those Children and there families.
The Dino Doozer Foundation recognizes this and is here to support those who need help. Please if you know of a family in need....PLEASE CONTACT US BY PHONE ANY TIME DAY OR NIGHT.
Childhood Cancer....no family should have to go through this on there own.
|Posted on January 20, 2012 at 10:09 AM||comments (348)|
|Posted on January 17, 2012 at 11:10 AM||comments (2348)|
Well Son I think you would be very proud of what the Foundation has been doing. We have been growing...slowly but we have been growing just like you wished.
I was out to lunch with some of the girls from the office a few weeks ago. We walked in to take our seat and noticed a was a group of Ladies from the Red Hat Society sitting behind us. I turned to check out some of the hats and noticed a woman who seemed to have plexiform neurofibromas on the outside of her skin. I thought to myself....she has NF and I am not leaving until I find out for sure and let her know that she is not alone.
At the end of our meal as we were heading out I had a chance to speak with the most kindest woman and yes she did have NF. We introduced ourselves and talked for a good 15 min. I wish I could of sat down and talked to her then but I had to return to work. I gave her my card and told her what I could about our Foundation in hopes that she would contact us.
I am pleased to say she did. A few days later I was checking me e-mails and I received one from her and we will be meeting up soon to visit. I can't wait to hear her story and how she has lived with NF.
It's because of you son I have been able to find the courage to push on. I miss you and love you very much.