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|Posted on January 22, 2014 at 9:01 AM||comments (203)|
Neurofibromatoses affects more than 100,000 Americans; this makes NF more prevalent than Cystic Fibrosis, hereditary Muscular Dystrophy, Huntington’s Disease and Tay Sachs combined.
With that being said...what do you think of NF now?
Please make yourself aware of NF and the different types of NF out there. Children are being teased daily because of the way NF is deforming there bodies. Surgery after surgeries are being performed daily to lighten the load of heavy tumors found on there bodies. Some tumors weighing more than 10 lbs.
Please ..... Helsp support Dino Doozer send kids with NF to Camp NewFriends so they can learn how to deal with every day life and living with NF. Give them a chance to see others with NF and let them know they are not alone.