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Dear Sherod
It's been a long road
Remembering you at Christmas


A letter to Andrew Becker
A letter to Heaven
Another Kind of Normal
Challenging times
Getting the Word out !
How it all began
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Dear Sherod

Dear Sherod,
   Well this last Dec. marked 7 years since your passing and it hasn't been easy without you here. So much has changed since you've been gone. Your going to be an Uncle for the 2nd time and your niece Sofia shares your middle name in your honor. 
   The Foundation is continuing to go and we are meeting more and more families with NF and helping out more and more families in our very own community. 
  I won't lie it has been very hard holding down a full time 5o to 60 hour a week job, be a wife, a mother and a grandmother and keep the foundation going.

It's been a long road

Well son .... we did it!!!! This years Masquerade Ball was a huge success. I feel we are reaching more and more people each year and in turn we are able to help out more in our communitie. This year we were SOLD OUT!!!! I can't tell you how good that feels to say that.
   A wonderful man by the name of Scott Mathews made this amazing metal sculpture of Dino Doozer to hang locks on. I wish you could have seen it..... you would love it. Right now we are selling locks with little metal hearts to hang on it in memory of loved ones lost.


Well it's that time of year again where I go out and get things ready for the Annual Dino Doozer Masquerade Ball. A lot of people ask me how and why I started this foundation. Well this is the how and the why:
    Sherod (my son is reason why) I started this foundation. It all started with a diagnosis of Neurofibromatosis when he was 3 months old and then his diagnosis  of cancer back on Aug. 4, 2008. I was told my son had cancer. Then as the weeks went by the cancer turned out to be more than what the Dr.


It happened on a cold snowy night 5 years ago today. I held your hand one last time,I kissed your cheek and I brushed your hair back as you told me it was almost time for you to go.
I was so scared and hurt and felt all alone. I knew I had to let you go and I knew then just as I know now that, that was the most hardest thing for me to do was tell you goodbye. You were only 16.... You experienced more pain and suffering than any child your age should.
you did put up hell of a fight son. You were so brave.

Remembering you at Christmas

     As the Christmas Season draws near my heart begins to hurt just a little more with each passing day. This year will mark Sherod's 5th year in Heaven. You know that old saying that "time heals all wounds"... well I can tell you that this wound will never be healed, but I have been learning to deal with the loss one day at a time.

   I know there is a lot of other parents who will have a hard time this Christmas Season as they are missing there loved one(s) as well.

Missing you Sherod

Today is a much needed emotional day. I miss you son and I hold my feelings in for so long that it seems my sides will split with sorrow. I know I shouldn't hold it in, but I just don't like to share my feelings with everyone and I never really seam to have that alone time needed. You've been gone for over 4 years and I still haven't watch a single memory movie we started making during your first round of chemo. I'm afraid of the pain and hurt I will feel seeing you and hearing your voice only on the tv but not in real life.

Facts on NF

 Neurofibromatoses affects more than 100,000 Americans; this makes NF more prevalent than Cystic Fibrosis, hereditary Muscular Dystrophy, Huntington’s Disease and Tay Sachs combined.
            With that being said...what do you think of NF now?
  Please make yourself aware of NF and the different types of NF out there. Children are being teased daily because of the way NF is deforming there bodies. Surgery after surgeries are being performed daily to lighten the load of heavy tumors found on there bodies.

A letter to Heaven

  Dear Sherod,
      As you know we are working around the clock amping things up for this years Annual Dino Doozer   "An Evening with the Stars" Event.  We have been on a Cupcake Campaign and it seems to be paying off. Yesterday we received a very generous donation and it just felt like such a ground breaking moment. I can't really even put into words how amazing it felt. Tears of joy came over me and I just knew at that minute that all our hard work is paying off.

Saying Goodbye

3 Years ago today I watched my son take his last breath. Since then my life has never been the same. This day will always remind me of that day for as long as I live. Telling my son I love him and saying good bye was not what a mother is suppose to do, but that is what happened on this Dec. 29, 2009.
The last 3 years have been very hard for me, my kids and our family. I have been running from my sons death all this time. Hoping I will wake up and it will all be a bad dream, but every day I wake and he is still not here.

A Mothers Cry

    Dec. 29, 2009 is a day I will never forget. As that day approaches my heart begins to ache harder with each passing minute. To relive that last day with you is not something I can easily share with anyone. It's hard to believe you will be gone for 3 years.....the pain I feel is still so new and heart breaking.  I often wonder if the pain will ever go away and if it does what is going to happen to me then?
    I miss you Sherod and everything about you.
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